CAMR Reform
A recent letter to my member of parliament. I’d encourage you to read it and consider contacting your federal representatives as well. If you’re really out of the loop you can find out who your MP is By using your postal-code.
Hello Linda Duncan.
I don’t know how intimately you understand the worldwide AIDS situation, it’s a complicated beast to say the least. Inarguably a huge contributing factor to the perpetuation of this issue is the fact that people don’t know any better than to keep spreading the disease either because they don’t know they’re infected or because they don’t know how to take simple steps to prevent transmission. Getting people started on treatment is intimately tied to education. Communities of people living with HIV/AIDS who are living as a result of ARV treatment change the societal outlook on the disease, instead of a silent killer amongst the culture treated individuals are given physical ability to stand up against it and confidence against the disease is created within the community. This is a step along the avenue to conquering the disease.
- 2.3 million children under the age of 15 are infected with HIV.
- Less than 15% of the 780,000 children who need treatment are on the necessary medicines.
I personally don’t think it’s particularly important to discuss how many people are going to die this year as a result of this problem. Anti-Retro-Viral treatment is not going to keep them alive forever. They do however, change the perspective of a community being wiped out by the disease, the question is a quality of life for the living. It’s about creating hope and inciting change.
You might be interested to know that I along with approximately 100 other students at the University of Alberta (the vast majority of whom I presume live in your riding) raised nearly $7000 at the end of last month to support the work of an organization called Dignitas International. (www.ualberta.ca/~dignitas) Our fundraising is basically going to be purchasing drugs and that’s it. Getting drugs moving is considered such an important part of this process that all we focused on this year as students was awareness and the purchasing of drugs. The International organization is putting a huge effort towards distribution and care system optimization (I’d be excited to provide more information about dignitas international if you’re interested) but drug movement is a huge deal, so much so that it’s all we focused on for this year’s fundraising event.
Here is where the situation involves our national government and therefor you!
In 2004 Canada responded to the urgent need for medicines in many developing countries by creating “Canada’s Access to Medicines Regime”, with the goal of getting more affordable, generic medicines to patients in the developing world. Unfortunately, the initiative was, and remains, seriously flawed. The bureaucratic burden associated with it has limited its use to one instance in the last 5 years.
The good news, though, is that CAMR can easily be simplified… without any additional spending. In testimony and submissions to Parliament, the Canadian HIV/AIDS Legal Network and other organizations have outlined how CAMR can be streamlined by moving to the ‘one license solution’. Canada’s largest generic pharmaceutical manufacturer has made the commitment that, if CAMR is simplified, it will produce a lower-cost children’s version of a key AIDS drug for export to developing countries under CAMR. I request that you support the bill associated with this issue, a long term positive impact is directly linked to the passing of this bill.
I recognize that as a representative of this area you’d like to represent our interests but likely struggle a bit to know what people deem important. Consider the fact that there are 100 constituents who actively are making an effort to see AIDS drugs moving. I have a hard time imagining that you could even find 100 people who in principle are against the concept let alone making an active effort with their time and money to move in that direction. Please bring the situation with the CAMR to the attention of the New Democrats and request party support in the HOC. Bringing this issue beyond attention and towards action is critically important.
I look forward to hearing your response.
Josh Krabbe

